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VNA of Care New England
VNA of Care New England

Resource Guide for Chromosomal Abnormalities

RESOURCES

Address: 4301 Connecticut Avenue, NW, Suite 404 Washington, DC 20008

Phone: 1-610-872-7608

Internet address: http://www.geneticalliance.org/

Description of services provided: The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

RESOURCES

Address: 11 Keats Court Coto de Caza, CA 92679

Phone: 1-888-999-9428

Internet address: http://www.genetic.org/

Description of services provided: This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations.

RESOURCES

Address: 1275 Mamaroneck Avenue White Plains, NY 10605

Internet address: http://www.marchofdimes.com/

Description of services provided: The March of Dimes provides information on pregnancy and birth defects and gives referrals.

RESOURCES

Address: 666 Broadway, 8th floor New York NY, 10012

Phone: 1-800-221-4602

Internet address: http://www.ndss.org/

Description of services provided: The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

RESOURCES

Address: 233 Canterbury Drive Wallingford, PA 19086

Phone: 1-800-336-GENE 1-202-966-5557

Internet address: http://www.nsgc.org/

Description of services provided: On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

RESOURCES

Address: 2982 South Union St. Rochester NY, 14624

Phone: 1-800-716-7638

Internet address: http://www.trisomy.org/

Description of services provided: This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

RESOURCES

Address: 231 W. Park Ave. Sellersville, PA 18960

Phone: 1-215-453-2117

Internet address: http://www.triplo-x.org

Description of services provided: Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition.

RESOURCES

Address: 14450 T.C. Jester Houston TX, 77014

Phone: 1-800-365-9944

Internet address: http://www.turnersyndrome.org/

Description of services provided: The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

RESOURCES

Address: P.O. Box 268 Lakewood CA, 90714

Phone: 1-888-970-0777

Internet address: http://www.fivepminus.org

Description of services provided: This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

RESOURCES

Address: 5700 Midnight Pass Rd., Suite 6 Sarasota FL 34242

Phone: 1-800-926-4797

Internet address: http://www.pwsausa.org

Description of services provided: The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.

Revision Information

  • Reviewer: Brian Randall
  • Review Date: 09/2012
  • Update Date: 09/10/2012
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